At MRSA, we are thrilled to see Ema Guimond’s story launched as the first Remarkable Rett Story on the Rett Life website and Facebook page. Rett Life is a Canadian community hub for anyone impacted by Rett syndrome and includes disease awareness information, resources, and stories from Rett families. Sharing personal stories of people living with Rett syndrome not only raises the profile of this rare disease, but helps the wider community understand what makes our girls (and boys) so incredible!

Get to know Ema, our resident Swiftie and water sport enthusiast, by visiting www.rettlife.ca/rett-stories/ema. Keep an eye out on the Rett Life website for new stories coming soon from other Manitoban and Canadian families and subscribe to the newsletter to stay up to date!