Manitoba Rett Syndrome Association

What is Rett Syndrome?

Most people have never heard of Ret syndrome. But some might know a girl that lives in their neighborhood and shows strange neighborhood and shows strange ...

Symptoms of Rett Syndrome

A small head size and it grows at a slow rate.
Loss of ability to use hands to pick n hold objects.
Inability to speak or only speak few words.

Rett Syndrome Facts

Rett syndrome is a rare genetic or hereditary neurodevelopment disorder noted almost exclusively in girls, since the disorder is often fatal in boys..

It is caused by a mutation of the MeCP2 gene located on the X chromosome. It affects one in every 10,000 female births.

Canadian Rett Syndrome Registry

The Canadian Rett syndrome registry is a national database for individuals diagnosed with Rett syndrome....

Why is this registry important?

Researchers studying Rett syndrome need good information to understand how the disease affects people. The registry is a critical step that will...

Making a Diagnosis

At present, the diagnosis of Rett Syndrome depends upon documentation of a girl's early growth and development and continuing...

What is Rett Syndrome?

Symptoms of Rett Syndrome

Rett Syndrome Facts

Registry

Canadian Rett Syndrome Registry

Why is this registry important?

Making a Diagnosis

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Rett Syndrome Resources

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